US Insights

Health Heroes: Understanding the impact of a rare disease

Michael Fronstin

General Manager - Kantar Health

Health 02.26.2020 / 09:00

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Michael Fronstin and Taryn Earley, the grandmother of a child suffering with Type 3 Gaucher disease, discuss the caregiving challenges for this disease.

Health Heroes is Kantar’s new monthly podcast series focusing on patients, their health journey and unmet needs, and how the life sciences industry can contribute to improving health outcomes. With more than 6,000 rare diseases, Kantar’s debut episode coincides with Rare Disease Day 2020, and centers on the impact of Gaucher’s disease, a debilitating condition that impacts 1 in 100,000 live births and is caused by a deficiency of a specific enzyme (glucocerebrosidase) in the body impacting the spleen, liver, kidneys, lungs, brain and bone marrow. In this episode, Michael and Taryn sit down with Dominic Tyer from pharmaphorum, the online destination for pharmaceutical news and analysis, to discuss the impact of Gaucher disease on patients and caregivers and how the development of patient registries can help deliver new innovations in medicines and treatment, improved patient outcomes, and better quality of life for those suffering with Type 2 and Type 3 Gaucher disease.

 

Source: Kantar

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